Supporting oncologists

in guiding patients with pediatric acute lymphoblastic leukemia and their caregivers

POLARIS is a set of communication tools that explains treatment of pediatric Acute Lymphoblastic Leukemia to parents and children and support them from start of treatment to recovery with relevant information and guidance

About POLARIS

POLARIS is a project by the European branch of the International Society of Pediatric Oncology (SIOPE) in partnership with the European branch of Childhood Cancer International (CCI) to clarify leukemia treatment for patients and parents and guide them along the road to recovery.

The Polaris project consists of a series of post-diagnostic communication tools, including visual/graphic translations of various treatment protocols – available as in-clinic roadmaps for healthcare professionals to use when they discuss the treatment plan, as well as a series of Polaris Websites, designed to help patients and parents understand acute leukemia, it’s treatment and day-to-day guidance.

The post-diagnostic website is only available to parents and patients if the healthcare team shares the information with patients and parents, and we kindly ask you to familiarise yourself with the information and to share it with patients and parents.

I have to say this tool box is fantastic. I’ve used it on several patients now and they really love it as well and use it. We don’t know how much they use it at home, but we will find out. I really recommend to everybody to use it because it is a great tool. And it is true, the roadmaps we distributed in the past, are very complicated, this is a much better approach for both the children and the parents, in particular these little videos explaining what is a cell, what is an MRD, they are fantastic. Thank you very much!

Prof. Doctor Martin Schrappe

Clinic for Pediatric and Adolescent Medicine, University Hospital Schleswig-Holstein, Kiel, Germany

We have already received the tool boxes and we have already used the tool boxes with several patients and families, the patients love it, the parents love it and I was very happy to see, that smaller children but even the older children and adolescents love it as well and they are very keen on sharing and having control of their therapy, where they are, what comes next. I’ve only had positive feedback from the families, we have it in Greek, they are scanning the QR codes from the cards and they are watching the videos.

Prof. Doctor Mirella Ampatzidou

Department of Pediatric Hematology-Oncology, Aghia Sophia Children’s Hospital, Athens, Greece

POLARIS patient websites for specific treatment protocols

AIEOP-BFM 2017

Polaris user introduction

ALLIC Maps User Guide

ALLTogether & ALLIC Website Tour

ALLTogether Maps User Guide

Polaris Introduction by Prof. Carmelo Rizzari

AIEOP BFM Boards Introduction

AIEOP BFM Website Introduction

Help us improve POLARIS project

Surveys

HCP Survey

Help us enhance POLARIS by sharing how our tools support your work in guiding patient treatment.

Patient and Parent Survey

Your feedback helps us improve how POLARIS supports families during leukemia treatment and recovery.

Receive the printed POLARIS Project materials

Order Printed Materials

Doctors can request printed booklets with detailed treatment illustrations to help explain pediatric leukemia care to patients and families.

POLARIS webinars

ALLIC & AIEOP-BFM next steps webinar – 28Oct24

ALLIC & AIEOP-BFM pilot sites webinar – 22Jan24

Upcoming events

Webinar: Lorem ipsum dolor sit amet

Sep 25, 2024, 9:00 AM – 4:00 PM (EST)

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